Dementia care and information
If you or someone close to you has been diagnosed with dementia, it can be a very daunting time. You will have lots of questions... What is dementia? Is there any treatment? How will it progress? What support is available? How can I access benefits? Are there any local support groups?
We have put together a list of useful resources to help answer all your questions and alleviate some of the anxiety. You are not alone and there is a wealth of local support available to you. We hope you find this helpful.
DEMENTIA – USEFUL RESOURCES
Dementia Advisor Triage - 01273 584 310 – for anyone with a diagnosis of dementia to self-refer into Dementia Services, including carers wishing to refer into the Dementia Support Worker service and the Carers Information and Support programme
Alzheimer’s Society - Lots of information, help and support, FAQs, explaining the diagnosis,
“Singing for the brain” music therapy, and dementia advisors
- Phone: 01424 773687
- Email: firstname.lastname@example.org
- Helpline: Phone: 0300 2221122
Condition leaflet - explaining the different types of dementia
Advanced Care planning: Planning for the future is important, whether you have serious health
problems or not, as there may come a time when you are unable to make decisions and say how you
would like to be looked after. With your GP at the surgery, a care plan can be created detailing
how you wish to be cared for in the future. It is advisable that every patient with dementia does this
when they are first diagnosed.
- You can make an appointment with a GP you know well, or Dr Archer, the dementia lead will
happily go through this with you. Please make an appointment, telling the reception staff it is
for a “Dementia Care Plan”. This will need to be a 20 minute appointment.
Supper Club: The Supper Clubs are held in eateries countywide – current areas include:
Eastbourne, Hailsham, Seaford, Lewes, Crowborough, Robertsbridge, Hastings & Bexhill.
Dementia Supper Clubs offer informal social groups for Carers and the cared for person as part of
the Carers Breaks Dementia Engagement Service meeting monthly at various locations around the
county. Call for details
- Phone: 01323 449294
Dementia support at the bridge: Mondays drop in social get-together, table activities and games
available. Fridays 3pm - 4pm - Silver Lining Singing Group.
- Phone: 01424 433 611
- Hastings Voluntary Action, The Bridge, 361 Priory Road, Hastings, East Sussex, TN34 3NW
Memory or Dementia Support (MoDS): MoDS is a volunteer led project supported by Building
Stronger Bridges. MoDS is a Good Neighbour Scheme and Support Group for people with
Dementia or memory problems, and the people that care for or support them. The aim of the group
is to support people to remain part of their community by providing befriending, signposting, guest
speakers and community information
- Tesco Extra Community Room, Churchwood Drive, Hastings, East Sussex, TN38 9RB
- Email: email@example.com
Library service: Books on prescription, home service, reminiscence resources
- Phone: 0345 6080196
- Email: firstname.lastname@example.org
Hastings and St Leonards Dementia Action Alliance: A group of local people and organisations
who have come together with the aim of working towards Hastings and St Leonards becoming
dementia friendly. Have a look at their website for more information
Association of carers: Respite and Befriending - gives carers a break from their caring role
offering them an opportunity to have some time to themselves. A volunteer is provided to befriend
the cared for person and stay with them so their carer can take a break. The volunteer is unable to
offer personal care or medication. Continence needs to be managed.
- Phone: 0300 330 9498
- Email: email@example.com
Telecare: Telecare offers a comprehensive way of managing the risks to a person’s independence,
health and home environment, 24 hours a day, 7 days a week. The Telecare solutions that are
available can be tailored according to an individual’s needs; by placing a variety of discreet
wireless sensors around the home, which will automatically raise an alert if they detect a possible
problem. Coverage: Countywide. Client’s personal budget will be charged for cost of equipment,
sensors and monitoring. The maximum contribution from the client is £2.85 per week, subject to a
- Phone: 01323 644 422
- Email: firstname.lastname@example.org
STEPS: to stay independent is a free and confidential housing support service. They can visit you
at home, and help you work out what support you personally need to keep living independently,
regardless of what kind of accommodation you live in.
- Phone: 0300 123 2422
- Email: email@example.com
HARC - can provide assistance with the following: obtaining the correct benefit entitlement for
local people; increasing income for those in need; contributing to local regeneration; providing
education and training for work; assisting elderly and disabled people to live independently;
providing opportunities for volunteering; employing local people. HARC also provides home visits
for elderly and disabled people and advice surgeries in various locations. HARC has two charity
shops in Hastings & St Leonards.
- Phone: 0333 3440681
- Email: firstname.lastname@example.org
Emergency adult social care: Outside of normal office hours our Emergency Duty Service will
respond to serious Adult Social Care issues that cannot wait until the next working day. The contact
details for this service are: Monday to Thursday: 5pm to 8.30am Weekends: Friday 4.30pm to
Monday 8.30am Public holidays:
- 24 hours Phone: 01323 636399
- Phone: 0345 60 80 191
Care Respite Emergency Support Services: You can register a plan with the Care Respite
Emergency Support Services (CRESS) to make sure that short-term emergency support is in place.
You will be given an East Sussex Carers Card so that in an emergency you or someone else can call
the number on the card. We will then contact the emergency contacts listed in your plan. If none of
the people listed in your plan are available we will provide support for the person you look after.
- Phone: 0123 738390
- Email: email@example.com
Updated February 2017
Advanced Care planning
Planning for the future is important, whether you have serious health problems or not, as there may come a time when you are unable to make decisions and say how you would like to be looked after.
You can access the Preferred Priorities for Care (PPC) document which is designed to help you prepare for the future. It gives you an opportunity to think about, talk about and write down your preferences and priorities for care at the end of life.